GDPR privacy notice

The Privacy Notice provides information about how the University of Leicester collects and uses your personal information when you take part in this research.

Please also refer to our participants information on our webpage for further details about the research project. It tells you what information we will collect about you, and how it will be used.

The University of Leicester will usually be the Data Controller of any data that you supply for this research. This means that we are responsible for looking after your information and using it properly. This means that the University will make the decisions on how your data is used and for what reasons. The exception to this is joint research projects, if this is applicable you will be informed on the Participant Information Sheet as to the other partner institution(s) who will also have responsibilities for looking after your information. You can access more information on this via the University’s Information Assurance Services.

Why do we need your data?

We are using your data to collect information on individuals that exercise frequently and at high intensity. These individuals are at a higher risk of developing an arrhythmia called atrial fibrillation. Atrial fibrillation is associated with a higher risk of a clot in the brain, called a stroke. We want to know what the risk of stroke is in athletes above the age of 40, who have competed in at least one event and have a diagnosis of atrial fibrillation. For more information, please see our patient information sheet.

University of Leicester’s legal basis for collecting this data is:

Processing is necessary for the performance of a task in the public interest such as research.

If the university asks you for sensitive data such as; your racial or ethnic origin, political opinions, religious or philosophical beliefs, trade-union membership, data concerning health or sexual life, genetic/biometric data or criminal records, the University of Leicester will use these data because:

Processing is necessary for scientific or research in the public interest.

What type of data will the University of Leicester use?

We are extracting data only through the answers that you give in the survey. These will include:

  • Your total exercise lifetime dose
  • Your past medical history
  • Behaviours such as drinking and smoking
  • Your family history
  • Your email if you wish to provide this

Who will the University of Leicester share your data with?

We will not share personal data with the public. Depending on the results of the study, we may use anonymised data to apply for a grant. We may also consider publishing the results of the study in a scientific journal. In either case, the data will always remain anonymised.

Will the University of Leicester transfer my data outside of the UK?

We will not be transferring your data outside of the UK or outside the University of Leicester.

What rights do I have regarding my data held by the University of Leicester?

Your normal rights under the Data Protection Act and the General Data Protection Regulation apply. However, we need to manage your records in specific ways for the research project to be reliable. This means that we will not (always) be able to let you see or change the data we hold about you.

You can stop being part of the research project at any time, without giving a reason, but we will keep information about you that we already have and continue to use this for the purposes of the research project as outlined on the webpage.

Who can I contact if I have concerns?

In the event of any questions about the research project, please contact the researchers in the first instance. The details can be found on the AFLETES study webpage.

If you have any concerns about the way in which the research project has been conducted, please contact the Chair of the University Research Ethics Committee at ethics@leicester.ac.uk.

The University of Leicester Data Protection Officer is:

Elisabeth Taoudi, Data Protection Officer and In-House Commercial Lawyer,
University of Leicester,
University Road, Leicester, LE1 7RH
T: 0116 229 7640
Email: et177@le.ac.uk

For further details about information security, please contact the Information Assurance Services team.